LibGuides: Multiple Sclerosis: Coping with MS

Organizations

Multiple Sclerosis Association of America
706 Haddonfield Road
Cherry Hill, NJ 08002
Email: webmaster@msassociation.org
Tel: 856-488-4500, 800-532-7667
Fax: 856-661-9797
Multiple Sclerosis Foundation
6350 North Andrews Avenue
Ft. Lauderdale, FL 33309-2130
Email: support@msfocus.org
Tel: 954-776-6805 888-673-6287 (MSFOCUS)
Fax: 954-351-0630
Accelerated Cure Project for Multiple Sclerosis
300 Fifth Avenue
Waltham, MA 02451
Email: info-web0209@acceleratedcure.org
Tel: 781-487-0008
Fax: 781-487-0009
National Multiple Sclerosis Society
733 Third Avenue
3rd Floor
New York, NY 10017-3288
Email: ContactUsNMSS@nmss.org
Tel: 212-986-3240, 800-344-4867 (FIGHTMS)
Fax: 212-986-7981
American Autoimmune Related Diseases Association
22100 Gratiot Avenue
East Detroit, MI 48021-2227
Email: aarda@aarda.org
Tel: 586-776-3900, 800-598-4668
Fax: 586-776-3903
Multiple Sclerosis International Federation
Multiple Sclerosis International Federation
3rd Floor, Skyline House
200 Union Street
SE1 0LX
London, United Kingdom
Tel: 4-420-7620-1911
Fax: 4-420-7620-1922
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About MSIF: "Our projects and programs are truly international, involving experts and key volunteers from countries across the globe. Our four main areas of work are international research, supporting MS organisations, advocating for and raising awareness of MS, and communicating MS information."
Content is also available in Arabic, Dutch, French, German, Russian, Spanish, Portuguese, Italian, and Chinese.
This site also features a Google Translate bar for translations into other languages that is located in the bottom right-hand corner of the page.
Multiple Sclerosis Society
MS Society
MS National Centre (MSNC)
372 Edgware Road
London
NW2 6ND
Question Emails: infoteam@mssociety.org.uk
Conversations Emails: helpline@mssociety.org.uk
Tel: 4-020-8438-0700
Fax: 4-020-8438-0701
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From the site: "38,000 members. 9000 volunteers. 260 staff members. One aim: to beat MS.

"The MS Society is the UK’s leading MS charity. Since 1953, we've been providing information and support, funding research, and fighting for change."

Communities and Support Groups

MSWorld
From the site: "We are here to provide support and educational information in living with multiple sclerosis. MSWorld offers chat, message boards, a resource center, a conference center, an arcade, and a Creative Center... along with social networking connections on Facebook and Twitter."
MS Connection
From the site: "We help each person address the challenges of living with MS through our 50-state network of chapters. The Society helps people affected by MS by funding cutting-edge research, driving change through advocacy, facilitating professional education, and providing programs and services that help people with MS and their families move their lives forward."
MS Connection provides information about MS as well as a blog, various types of support groups, and opportunities to connect to others living and coping with Ms through social media sites like Facebook, LinkedIn, and Twitter.
Multiple Sclerosis Foundation (MSF) Support Groups
From the site: "MS support groups provide people with MS and their families an opportunity to share their MS experiences with those who can understand and identify with them. Support group meetings are designed to be educational, fun, and positive.
"In addition to supporting their members, MSF support groups are frequently active in raising awareness of MS in their communities.
"Each support group meeting is a little different – some are educational with speakers, others are more social, and some are a little of both. In addition, many support groups welcome participation from friends and family members."
Personal Stories
Provided by the National Multiple Sclerosis Society, this page includes stories from people living with MS or whose lives are affected by MS.
Stay Informed!
The NMSS provides way in which you can stay connected: MS News & Press, Online MS Community, MS eNEWS, MS Connection Blog, and social media like Facebook and Twitter.

Literature and Videos

MSi - Multiple Sclerosis Information
An initiative developed and maintained by the Multiple Sclerosis Association of America, this site provides links to an extensive library of videos, webinars, webcasts, and chatrooms whose coverage includes treatment and management of exacerbations, a closer look at MS research, intimacy and MS, and MS and complimentary and alternative medicine, as well as being money smart, working toward financial wellness, and understanding disability benefits.

Below is a list of resources that deal with receiving an MS diagnosis. Topics range from how to tell people you have MS to the emotional impact of diagnosis to having MS and starting a family.

Coping with MS - The Cleveland Clinic
This PDF was produced by the Cleveland Clinic. It provides a brief overview of the effects of chronic illness, tips for learning how to make your life better, ten habits to follow, and suggestions for what to do at times of symptom activity.
Telling People You Have MS - MSIF
The Multiple Sclerosis International Federation (MSIF) gives some tips of who to tell and ways to inform your employer, colleagues, family, friends, and other loved ones.
Coping with Diagnosis - MS Society
Everyone diagnosed deals with the news in different ways. This page gives a brief overview of some common emotions, a short video on coping, and some helpful links to feelings of grief or guilt and telling friends and family.

Subject Guide

Library Staff